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Chronic illness blogs can sometimes be hard to find. It’s not that they are few and far between though. It’s more that you will find a bunch of blogs written by clinics and the like on the side of their professional sites. While these can certainly be useful, I prefer actual patients telling their stories.
It makes chronic illness more real, more personal. It makes “patients” people again. It’s important to show the humanity behind such illnesses and raise awareness past the clinical definition. Learning the name of an illness and the associated symptoms is a good start, but learning how individuals actually live their lives with them should be the next logical step.
It often isn’t though. Healthcare professionals and those who are newly diagnosed can greatly benefit from real life experiences. Doctors can connect with their patients better and the patients themselves can know they aren’t alone. They might even find ways to treat symptoms they hadn’t thought of.
There are so many amazing chronic illness blogs out there, I certainly can’t list them all. This list is just a handful of my favourites that make a great starting point for learning what it’s actually like to live with a chronic illness. You can check out my own experience too.
Sheryl has numerous health issues: Antiphospholipid Syndrome, Lupus, Sjögren’s Syndrome, Epilepsy, PSVT, etc, etc, etc. A large list for one individual to have to fight against. She writes beautifully and seems to work tirelessly for the chronic pain and illness community. It’s incredibly difficult to not get trapped in her posts and spend far more time than anticipated reading her poetic outlooks on all aspects of life with chronic illnesses.
Carrie is a chronically ill Canadian (woo!) living in Taiwan. She writes about travelling, chronic pain and illness, and her advocacy and awareness work. Her posts on Ankylosing Spondylitis have helped me to understand my mother’s pain better and led me down the path of research for her.
Claire also has a long list of chronic illnesses, so many people will be able to relate to her posts. I have found her information on fibromyalgia and POTS to be the most helpful to me. She also shares a ton of amazing low histamine recipes. I can no longer stop eating granola because of her.
Alice lives with an undiagnosed sitting pain, endometriosis, IBS and a hiatus hernia. She shares her experiences with pain and provides tips to help others cope. She covers a wide range of topics so you can easily spend hours going through her well written posts.
Cynthia lives with fibromyalgia, psoriasis, psoriatic arthritis and endometriosis. She has wonderful pain management tips and is a fellow cannabis user. I’ve certainly picked up a few cannabis tips from her.
Inspired by her personal pain diary and journal, Keisha writes about all things chronic pain. From chasing a diagnosis to pain management and self-care, there is something for everyone. Even if you don’t have chronic pain, there are plenty of personal development suggestions as well.
Rhiann lives with Functional Neurological Disorder. She is a wonderful advocate for chronic illness awareness, documenting every aspect of life with such difficult symptoms. Her perspectives on mental health are eye opening reads.
Caz’s list of chronic illnesses includes fibromyalgia, osteopenia, bronchiectasis, Autoimmune Mixed Connective Tissue disease and a few others. She also has a stoma. All of this leads to a very well rounded blog that brings a lot of awareness to invisible illnesses. Her posts are insightful and have made me laugh on more than one occasion.
Katie is another great choice for fibromyalgia reading. She is a retired teacher and it shows in her work. Her posts are very informative but not in a “homework assignment” way. She is a great advocate and I feel I would have enjoyed having her as a teacher.
If I missed any of your favourite chronic illness blogs, please let me know in the comments below. It’s hard to include everyone so please spread the love! Don’t forget to share this post too, get the word out (more) on these amazing blogs!
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